Richard Engel, the head foreign reporter for NBC News, said on Thursday that his son Henry, age 6, had passed away. The battle the youngster endured with a rare genetic disease had been openly discussed by Engel and his wife.
“Our beloved son Henry passed away,” Engel wrote on Twitter. “He had the softest blue eyes, an easy smile and a contagious giggle. We always surrounded him with love and he returned it, and so much more.”
Is Richard Engel sick?
Since 2018, Henry had received care at the Duncan Neurological Research Institute of Texas Children’s Hospital.
According to a memorial to Henry on the Texas Children’s Hospital website, who was born in September 2015, his parents first noticed he wasn’t meeting developmental milestones when he was just a baby.
Doctors discovered he had a mutation in his MECP2 gene through a genetic test. Rett syndrome, which mainly affects girls after their first birthday and includes cognitive deficiencies, speech loss, and a variety of movement issues, is brought on by the mutation, according to the hospital.